Tuesday, November 16, 2010
Scan on Thurday
Sunday, June 6, 2010
May 13th
Remember, I've been waiting for these results since December, so, I did turn the bitch on a little when the doctor suggested we leave the hospital with no results, but I was assured I would be called by the end of the day with results-- so we went out to eat.
I was starving. Remember; I hadn't eaten all day (first to prep for the scan, and then because I was too nervous). I ordered madly and Eric uncharacteristically agreed to all my demands. I placed my cell in the middle of the table. We ate in silence, staring at the phone. After dinner but before ordering dessert, the phone rang---
Janeen: Hello?
Voice over the cell: Janeen, It's Dr. ___'s nurse. I've got some bad news.
I felt my chin start to quiver and looked around the restaurant. I was determined not to cry in public, but I wasn't above crying in a public bathroom, so I started scoping out the best route to the ladies' lounge.
Voice over the cell: you have pneumonia
Janeen: (screaming) I don't care about the pneumonia! what about the cancer?!
Voice over the cell: cancer? the cancer's fine! [but she stretched out "fine" like "fffiiiyynnnne"]
Janeen: (frantic, but not so angry) Fine? what does "fine" mean?
Voice over the phone: remission
So, that's that. Eric declared "so this is a celebratory meal." I took a deep breathe and started texting family and friends.
Sooooooooo-- Today is June 6th. Why did it take me so long to finish up the blog? The good news has taken awhile to sink in. I'm really waiting for a follow up call from the doctor saying I've contracted some new life threatening illness... but I guess it really is going to be ok.
Life does seem lighter. Now that I have a good 30 years to pay it off, the debt we've accumulated over my illness isn't bothering me as much.
So, in sum-- Zevalin works. Three cheers for radioimmunotherapy.
Wednesday, May 12, 2010
restaging
Friday, May 7, 2010
This morning was my day to drop Evangeline off at school. We both were dressed and ready to go early, which left a little extra time to cuddle in front of an episode of “Dora the Explorer.” We were singing along, “Dit, dit, Dora, dit, dit ,Dora; Swiper-no-swiping; Swiper-no-swiping; O Man,” when I interrupted the theme song with coughing, which morphed into hacking, which turned into a sprint to the bathroom and, finally, loads of purple vomit in the toilet. Yes, purple. No, I can’t think of anything I’ve eaten that could remotely be described as purple. The possibility of night eating has crossed my mind, but I can’t think of any food or combination of foods in my house that would lead to purple vomit. Do you think I’m night breaking into the local Save-A-Lot and consuming grape soda?
Healthwise, it’s been a rough couple of weeks. On April 21st, I work up inexplicably cranky. I yelled at drivers for obeying their traffic signals when I wanted to jaywalk in front of them. I answered my local Streetwise vendor’s “good morning” with a “hmph” [I swear the “hmph” was me choking off a “humbug” on the way out of my mouth—I was that cranky.] During a meeting with my supervisor and partner that afternoon, I felt the room temperature drop a good 30 degrees. Their matching confused looks in response to my repeated question, “why is it suddenly so cold in here?” led me to believe that I was not only cranky, but sick as well.
The fever hit the next day, and I stayed in bed on Thursday and Friday. By Saturday, my temperature broke 101 and I emailed my hematologist to beg for drugs. She prescribed a Z pack. Apparently, Z packs are prescribed for everything from pneumonia to gonorrhea [when Eric read the latter, he asked me if there was anything I wanted to tell him]. On Monday, I stayed home from work. My hematologist phoned me and told me that she would see me anytime I would come in. I decline an appointment because I’ve developed an irrational belief that as long as I don’t go to the hospital, I’m not really that sick.
The lowlight of this sick spell was the nose bleeds. I went through boxes of Kleenex, then dish towels, then I would hold my head over the toilet. Finally, when I decided that I had sacrificed too many sweatshirts, blankets and towels to my blood falls, I just stripped down and napped in the bathtub.
So to further humiliate myself by making compromising facts public, I, Janeen, admit that I’ve read the entire Twilight series. Not only have I read the entire series, I’ve hated the heroine, Bella, since chapter one. I can’t stand her constant complaints about her superlatives—too many suitors, too deeply in love, too beautiful, too smart, to self-sacrificing, etc. I think my obsession with the series can be partially contributed to a hope that at some point one of the attractive vampires or virile werewolves will maim or kill Bella. Anywho, I bring this up because, in Book 1, the dashing vampire Edward is forced to carry Bella to the nurse’s office “The Bodyguard” style because the smell of blood makes Bella attractively woozy. Bella describes the scent of blood as metallic. To bridge this thought back to me—as I was soaking in a tub of my own blood, I thought, “this does smell like copper.” Dammit—that makes Bella always right as well. Jacob should have eaten her.
I am back at work this week. I feel loads better, but, obviously, still can’t shake this consumption style cough (and the purple vomit is worrisome). On the 15th, I see my hematologist and get re-staged—so, for better or worse, we’ll know if the Zevalin worked.
There is some good news—my period is back. Given my multiple of health issues, the return of Aunt Flo doesn’t equate to the possibility of a housefull of babbling babies, but it is making me feel youthful and not so close to death as I had before.
Tuesday, April 13, 2010
Lump
I see the doc on Thursday. I'll report back.
Thursday, April 1, 2010
Last Nap
Whatever. No matter how misty I get about time away from the little one, it has to happen. The medical bills are out of control.
As far as chemo type side effects: This last week the hot flashes seem to have dried up. So that's a plus. And I've gotten a few little pimples on my nose which makes me feel like my body is acting closer to normal. I've been jogging with the baby fairly regularly. OK, "jogging" might be an exaggeration. I've been doing sorta' a shuffle behind the jogging stroller. Stop your snickering-- it counts as exercise.
Sunday, March 28, 2010
Node Scare
So, I've been going about my business trying to pretend that I didn't know that I'm dying... again. And things just haven't been great. Our finances suck. We tried to refinance the condo, and it turns out we're so far underwater that we're hanging out with those creepy glow-in-the dark fish. Eric had to get a second job and dropped a class we've already paid for. He's constantly sleepy and cranky. I've arranged for more hours at work, so I won't be able to spend as much time with Evangeline, so I'm grumpy. Whenever we open our mouths, we seem to say something mean to each other, so we're mostly just quiet and awkward.
And Evangeline has hit a new stage. I was warned that the "mines" were coming, but Evangeline has been surprisingly generous and opened to sharing. Instead, the terrible 2s have been all about "I never ever" or phonetically "I neber eber." Evangeline neber eber uses the potty chair. She neber eber stops kicking the cat. She neber eber takes a nap-- you get the idea.
All in all, the stress levels in our household have been toxic.
Finally, reluctantly, I asked Eric to check the lump in my neck. I was ready for him to get out a flashlight, examine the bump, madly goggle, and get back to me later with alarming possibilities. Instead--
"It's a zit."
"What?"
"It's a great big pimple."
"Are you sure? it doesn't feel like acne."
"It's a zit."
That night I popped the neck lump while I was in the bath tub. It popped like a pimple. The atmosphere in our house is still tense, but I feel better. In fact, I've neber eber felt so good about a zit.